Tuesday, April 13, 2010

Not enough Time


My husband left Sunday Morning..... Not so happy about that one :( Layla seems to like him more than me! Hahaha! I cant get her to calm down or fall asleep and all he has to do is put her on his chest and she falls asleep instantly.
Its amazing to me how much he adores her. Not only did I never see the two of us with her and married but I never saw him being so obsessed with this tiny little girl. Its probably the sweetest thing I've ever seen. I love him <3
So our week with Daddy went well. I had some minor speed bumps but all in all it was a great week for the three of us. Layla is starting to talk, not really talk but coo and well, talk back when you talk to her. Shes very alert! So far all of the bad things I've read about Williams do not apply to her. As my husband put it...."So she's going to love music and have pretty eyes, Whats so bad about that?" If it were'nt for him I think I would be having a break down right about now.
Her Pediatrician gave us some good news as well, apparently he has two patients with Williams Syndrome, ands both are in college, drive, one is a drummer, and they have great personalities. Fingers crossed she'll be able to do all of those things.
A friend, I guess you could say a friend of the family since we all pretty much love her, Christine sent me an email with a poem I had never heard. It's probably the best description I've heard yet of how it feels to be where I am. My husband said the reason why we feel so different about this is because he never wanted kids so anything she does he loves, but I had this idea of children forever and now that idea is gone. Anyhoo Thank you to My hubby for being the giant child that he is and making me not sooooooo high strung, and Thank you to Christine for your kind words and a beautiful poem to help me see I'm not alone.
Welcome to Holland
by EmilyPerl Kingsley
I am often asked to describe the experience of raising a child with a disablity-to try to help people who have not shared that unique experience to understand it, to imagine how it would feel, it's like this.....
When you're going to have a baby, it's like planning a fabulous vacation trip - to italy. You buy a bunch of guide books and you make your wonderful plans. The Coliseum. The Michaelangelo David. The gondolas in Venice. You amy learn some hand phrases in italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The Stewardess comes in and says, "Welcome to Holland." "Holand?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But theres beena change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't take you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around........and you begin to notice that Holland has windmills.....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy.....and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away.......because the loss of that dream is a very very significant loss.
But....if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things.......about Holland
Mommy Loves you Layla

3 comments:

  1. That poem is beautiful. I really miss you guys. I love you both.

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  2. Thanks for all the updates. The latest pictures are adorable! I hope I get to meet her before you move <3 Christine

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